Mission Statement: “The mission of DEBRA of America is to improve the quality of life for all people living in the United States with EB, their families, and caregivers through free programs and services while funding research to find a cure and treatments for Epidermolysis Bullosa.”
About DEBRA of America
Debra stands for Dystrophic Epidermolysis Bullosa Research Association of America. It is a foundation that researches EB, a rare (1/20,000) genetic connective tissue disorder which children do not produce a vital protein to allow their skin to adhere to itself. A child with this disease has skin that is extremely fragile and can blister or tear from any friction. Currently there is no cure, so patients have to learn pain management, use protective bandaging, and practice daily wound care.
How You Can Help
I gathered all of my information from the DEBRA of America website.